2023-12 December Newsletter
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- Last Updated: 09 January 2024 09 January 2024
December 2023
In this month's newsletter:
- Event Recordings Available
- NEW! MassME Online Store
- NEW! Powerful Self-Advocacy
- Newsworthy Events and Links
- Spotlight: Giovanni Clarke
- Make Your Mark with MassME
2023-11 November Newsletter
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- Last Updated: 11 November 2023 11 November 2023
November 2023
In this month's newsletter:
- Recording Available! ME/CFS: Changing the Narrative
- Upcoming Events
- Newsworthy Events and Links
- Spotlight: Melissa Kulig
- Make Your Mark with MassME
ME/CFS: Changing the Narrative - Recording Available
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- Last Updated: 03 November 2023 03 November 2023
Ed Yong is a celebrated science journalist who cares deeply about accurate, nuanced, and empathetic reporting; clear and vivid storytelling; and social equality. His coverage of ME/CFS and Long COVID for The Atlantic has been groundbreaking, and has contributed to a changing public perception of these illnesses, moving us toward a public health agenda that recognizes the serious nature and commonalities of infection-associated chronic conditions, and supports advances in research and clinical care.
Mr. Yong shared with us how he came to the subject of ME/CFS and long COVID and what has motivated him to dig so deeply and tenaciously into them. He explained how he chose sources to interview and how he prepares for those interviews. We heard his thoughts on what is yet to be explored about ME/CFS from a journalistic perspective, and how science journalism contributes to changing perceptions.
Mr. Yong is a Pulitzer Prize-winning science journalist on staff at The Atlantic. In addition to his work for The Atlantic, Yong’s writing has been featured in National Geographic, The New Yorker, Wired, The New York Times, Nature, New Scientist and Scientific American. He is the author of two New York Times bestsellers—An Immense World, about the extraordinary sensory worlds of other animals; and I Contain Multitudes, about the amazing partnerships between animals and microbes.
Visit Ed Yong's website to learn more and sign up for his newsletter.
This event was part of the Association's 2023 Annual Meeting of the Membership.
Read more: ME/CFS: Changing the Narrative - Recording Available
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.