Advocacy
Join Us in Making
Our Voices Heard!
Let's advocate!

2025 will be a big year at MassME for social service and legislative advocacy. We are working with the Massachusetts Department of Public Health and the Massachusetts Legislature and we need your help.

Photo by Evgeni Tcherkasski on Unsplash

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A Home Base for People Affected By ME/CFS

Welcome to our new website!  We hope you will enjoy exploring all the resources and information presented in a fresh new format.  Please don’t hesitate to let us know if you have difficulty navigating, find errors in links, or have suggestions for further improvement.

 

The Boston Waterfront 5K fundraiser was a huge success! The weather smiled on us this year, and everyone had a great time before the race, on the course, and celebrating afterwards.

Perhaps most importantly, we exceeded our fundraising goal of $20,000. Team MassME was the second highest overall fundraising team at the event and five of the top ten individual fundraisers were on Team MassME, including our own Phil Chernin in the top position!

Enormous thanks to all participants: team members, those who came out to cheer, those who got the word out and cheered from home, and of course, all 200+ generous donors. 

THANK YOU!

Disabilities

ME/CFS, Fibromyalgia, Long COVID, and other IACCIs are “invisible”
life-altering disabilities.

Learn how to manage them.

Sunday Conversations

“Sunday Conversations with MassME” is a speaker series with discussions on a wide variety of topics. These sessions are appropriate for patients, family members/caregivers, and health care professionals. Sunday Conversations take place via Zoom on the 3rd Sunday of most months, and are free and open to anyone.

Keep Up With the News

We publish a fact-filled digital newsletter once a month.  Get in the know!

Recommend a Provider

Have you had a positive experience with a healthcare, legal, or social services provider?  We would like to add them to our services database, which now contains over 300 providers.

Effects of Long COVID

Did you know that the clinical profiles of Long COVID and ME/CFS are nearly identical? And that much of the research and guidance for Long COVID management is based on decades of ME/CFS research and clinical practice?

Photo by Elissa Garcia on Unsplash

Want to help?

 Are you looking for a way to refresh your spirit, and to connect with a community of like-minded folks doing important work? Our work is fueled by volunteers. Join us!

Why Massachusetts?

We began in Massachuseets in 1985 and have remained focussed on the people, instututions and services in Massachusetts. But nearly 40% of our constituents live in other states and countries.  We’ve been at this for a long time and accumulated much wisdom which we share freely, regardless of where you may live.  Learn about Membership