2021-11 November Newsletter
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- Last Updated: 17 November 2021 17 November 2021
Dear Friend,
In this month's newsletter:
- Video Available of MassME Annual Meeting with NIH Researchers
- E-book by Elizabeth Glixman
- ME/CFS Treatment Trials Coming Soon
- Our Friends in the News
- Mark Your Calendar
- More Videos
- Support Groups
Invisible Disabilities: Long COVID and Other Post-Infectious Chronic Illnesses -- Videos
- Details
- Last Updated: 25 February 2022 25 February 2022
This program was presented on September 15th, 2021, by the Health and Disability Partnership at the Massachusetts Department of Public Health, with the Massachusetts ME/CFS & FM Association.
View the videos for this event.
Imagine getting sick with a common cold or flu, or even an insect bite, and then never getting better. We present a diverse panel of people with post-infectious chronic illnesses, including Long COVID and Post-Lyme Disease, joined by a person with ME/CFS. Their personal stories are followed by a presentation from the former Medical Director of the Bureau of Infectious Disease and Laboratory Sciences, at the Massachusetts Department of Public Health: Alfred DeMaria, M.D. addresses the similarities between Long COVID, Post-Lyme, and ME/CFS.
2021-10 October Newsletter
- Details
- Last Updated: 17 October 2021 17 October 2021
Dear Friend,
In this month's newsletter:
- MassME Annual Meeting: NIH Research Update, October 23, 12:30 PM
- Support Groups!
- Invisible Disabilities
- Long COVID Alliance
- October is Dysautonomia Awareness Month
- Heywood Hospital Grand Rounds
- 21st Century Cures Act 2.0
- NIH Telebriefing, October 22
- Learn More: IACFS/ME summaries, long COVID lecture, paper on severe ME/CFS
More Articles ...
Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.