2020-09 September Newsletter
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- Last Updated: 14 September 2020 14 September 2020
Dear Friend,
In this month's newsletter: announcing our annual event, two research studies, a CDC stakeholder call, a reminder to contact your US Representative about H.R. 7057, a volunteer spotlight, and support groups. Read on for details.
2020-08 August Newsletter
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- Last Updated: 11 August 2020 11 August 2020
Dear Friend,
In this month's newsletter: video of a Round Table with Senator Ed Markey, announcing a Congressional Briefing, a limited number of free IACFS/ME 2020 Conference registrations for our members, some important new publications, a volunteer spotlight, and support groups. Read on for details.
2020-07 July Newsletter
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- Last Updated: 18 July 2020 18 July 2020
Dear Friend,
In this month's newsletter: a call to action, SMCI's new ME/CFS registry and biobank, the IACFS/ME 2020 Conference returns (virtually), a volunteer appreciation, and support groups. Read on for details.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.