USAWG submits testimony to Congress

April 15, 2016. Massachusetts CFIDS/ME & FM Association has endorsed Outside Witness Testimony to Congress, prepared by the U.S. Action Working Group (USAWG) and filed today with the House and Senate Appropriations Committees.

The Testimony provides members of the Committees with information about ME/CFS and makes the following funding requests:

  • CDC: Restore funding for ME/CFS in FY17 budget - $6 MM
  • HHS/Assistant Secretary for Health – Office of Women’s Health: Continue funding for Chronic Fatigue Syndrome Advisory Committee - $300,000
  • NIH: Follow through on recent statements to patients by providing significant and specific funding for ME/CFS research, including RFAs

 Read the complete Testimony here (House) and here (Senate).  

The U.S. Action Working Group is a coordinating committee for a number of non-profit organizations and patient/advocates working to advance research on the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). 

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Documents used in Congress visits March 2016