Advocacy

FDA Webinar on Advocacy

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Last Updated: 23 January 2016 23 January 2016

On November 15, 2012, the Food and Drug Administration (FDA) held a webinar for the ME/CFS community on “Working Together for Change.” Jennie Spotila, creator and moderator of Occupy CFS, provides a summary of the FDA webinar highlights at her blog as well as thoughts about what the patient community needs to do for a successful outcome. Permission was granted by J. Spotila to link to articles/posts at Occupy CFS.

More Articles ...

  1. Update on ME/CFS Patient Alliance meeting of Oct. 18 with Dr. Nancy Lee
  2. Summary of the Patient-Focused Drug Development Initiative
  3. FDA Patient-Focused Drug Development Intiative - Sample Letter (by November 1, 2012)
  4. Patients are urged to recommend CFS/FM for the FDA’s Patient-Focused Drug Development Initiative
  5. CDC Response to Massachusetts CFIDS/ME & FM Association
  6. Dr. Gurwitt's Statement for the October 2012 CFSAC Meeting
  7. Position Paper to CDC on CFS Toolkit and IACFS/ME Primer
  8. DHHS Response to Joint Request for Action prompts second letter
  9. Joint Request from the ME/CFS Community for Action - Positive Response from the FDA
  10. Joint Request for Action from the ME/CFS Community
  11. National advocacy efforts state concerns about revisions to DSM-V
  12. Kenneth Casanova's letter to DSM-V Committee of the APA
  13. Dr. Alan Gurwitt's letter to DSM-V Committee of the APA
  14. Advocacy Actions

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Congress2016 1

Documents used in Congress visits March 2016