Sunday Conversations - February 19, 2023

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Last Updated: 28 February 2023 28 February 2023

Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life

Sunday, February 19, 2023, 4 p.m. EST

Amy Mooney, MS OTR/L

Sallie Rediske, MPT

Melinda Maxwell, PT

Amy Mooney, MS OTR/L, joined us to present an occupational therapist's perspective of pacing for PEM. Amy described the essential strategies of pacing for PEM and created a framework to analyze activity and tasks within the limitations of PEM. Offering the physical therapist perspective, Melinda Maxwell and Sallie Rediske discussed physiological biofeedback strategies of pacing. This OT/PT team offered examples of how the pacing for PEM framework can support pwME and Long COVID as they engage in redefined meaningful and purposeful activities of daily living.

Following the discussion, the panelists responded to questions from the audience. The entire program lasted about 90 minutes.

Materials from the presentation:

• Amy Mooney slides: Pacing for PEM: An OT and PT perspective on what it is and how you can use pacing strategies in your daily life
• Sallie Rediske and Melinda Maxwell slides: Whispers vs. Screams: Listening with Heart Rate Biofeedback Pacing for ME/CFS
• Full video: https://www.youtube.com/watch?v=62mIuvabII0 (This version contains chapter headings for easier viewing)

Read more: Sunday Conversations - February 19, 2023

February Young Adult Support Groups

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Last Updated: 27 January 2023 27 January 2023

Young Adult Support Group for those with ME/CFS, FM, Lyme, Long Covid, and Chronic Illness

Tuesday, February 7th, at 3:30 P.M. ET

Saturday, February 18th, at 10:30 A.M. ET

Please Note: The meeting on Saturday, January 28th has been rescheduled to Saturday, February 4th at 10:30 A.M. ET.  
If you are already registered, there is no need to take action, we will send you the updated Zoom link.
If you would like to join the meeting on February 4th, click here.

These drop-in Zoom Support Groups are interactive and provide a safe space for patients to share stories and experiences, ask questions, and offer one another support.

The groups are run by Kerry Lang, LMHC. Kerry is a MA licensed mental health counselor with experience leading groups and workshops for those with chronic illness, specifically those with Lyme disease, and more recently Long COVID and ME/CFS.

Please Note: Due to professional licensing requirements, we are only able to offer this program to Massachusetts residents.

What age is considered Young Adult?
Anyone over the age of 18 who self-identifies as a young adult, either through age or via the life challenges typically experienced by this population. Relevant topics of this group are challenges with college/higher education, starting a career, housing challenges, dating and/or starting a family, and social challenges.

You are welcome to register for one or both sessions. These groups are free for members, with any donations to offset costs welcome. We ask non-members to contribute a $10 fee for each session. A contribution of $25 or more will include annual membership.

REGISTER FOR THE FEBRUARY 7th YOUNG ADULT GROUP

REGISTER FOR THE FEBRUARY 18th YOUNG ADULT GROUP

Sunday Conversations - January 22, 2023

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Last Updated: 28 January 2023 28 January 2023

Selected readings from The Long Haul, with Ryan Prior and Cynthia Adinig

Sunday, January 22, 2023, 4 p.m. EST

Thank you for joining us as journalist and ME patient Ryan Prior read excerpts from his new book, The Long Haul: Solving the Puzzle of the Pandemic’s Long Haulers and How They Are Changing Healthcare Forever, released November 2022 by Post Hill Press. He was joined by marketing specialist and Long COVID advocate Cynthia Adinig, whose experiences obtaining treatment are discussed in the book. Rivka Solomon, long-time ME/LC advocate and MassME member, hosted the meeting.

Following the readings, Ryan and Cynthia responded to questions and comments from Rivka and from the audience. The entire program lasted about 75 minutes.

Click here to view a recording of the presentation.

Read more: Sunday Conversations - January 22, 2023

Sunday Conversations - November 20, 2022

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Last Updated: 01 January 2023 01 January 2023

Join MassME for another small group Sunday Conversation! We are looking forward to meeting you "in person"!

"Coping During the Holidays with ME/CFS, Long COVID, and Related Chronic Illness"

Read more: Sunday Conversations - November 20, 2022