Association News & Events
Support Team MassME at the 2024 Boston Waterfront 5K!
- Details
- Last Updated: 06 June 2024 06 June 2024
Support Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9th!
Participate!
Come to the race and cheer us on as we Run/Walk/Roll for ME/CFS and the Long Haul! Help us to raise awareness of ME/CFS and Long COVID, and to fund MassME's ongoing information and support programs. The race begins at 10:00 AM on Sunday, June 9. The start/finish line is at the Black Falcon Cruise Terminal, 1 Black Falcon Ave, Boston. See the main event website for a course map and more information about the event. Public parking is available, and the course is accessible via public transit on the Silver Line.
Donate!
You can donate at the MassME team page, or choose one of our team members to support their efforts. All donations will help us continue to bring you information and support programs. The donation page will be accessible until June 20th. Help us reach our fundraising goal of $15,000!
Support Team MassME by clicking here. No amount is too small!
Together, we are stronger!
Sunday Conversations - June 23, 2023
- Details
- Last Updated: 28 June 2024 28 June 2024
“Improving Pain Care Through Education and Policy”
Sunday, June 23, 2024, 4 p.m. Eastern Time
Cindy Steinberg
Jackie Orent-Nathan
Michele Matthews
In this edition of Sunday Conversations, we continued our series on comorbidities with a focus on pain. A panel of three presenters from the Massachusetts Pain Initiative (MassPI) presente on the work their organization does to improve the lives of people suffering from pain through knowledge, education, and policy reform. Cindy Steinberg discussed her role in past and current legislative actions, both locally and nationally. Jackie Orent-Nathan talked about pain neuroscience and about solutions that use neuroplasticity to influence the reorganization of neural networks. Michele Matthews focused on medications and provided the "Ins and Outs of Medications for Pain and Symptom Management".
Read more: Sunday Conversations - June 23, 2023
Sunday Conversations - May 19, 2024
- Details
- Last Updated: 03 June 2024 03 June 2024
"Are You M.A.D.? An axis awry of Mast cell activation disease, Autonomic neuropathy, and Disorders of connective tissue"
Sunday, May 19, 2024, 4 p.m. Eastern Time
Dr. Anne Maitland
A growing body of evidence is linking heritable disorders of connective tissue, such as Ehlers Danlos Variants, with dysautonomia and mast cell dysfunction, which lead to chronic fatigue, brain fog, irritable bowel symptoms and pain syndromes. Dr. Maitland presented a brief review of the diagnosis and relationships of this clinical triad, MCAD, Autonomic dysfunction, and Disorders of connective tissue or hEDS. A better understanding of these relationships should lead to multi-disciplinary clinical therapies to help right this trio of modern day epidemics.
Read more: Sunday Conversations - May 19, 2024
Run/Walk/Roll for ME and the Long Haul with Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9
- Details
- Last Updated: 10 April 2024 10 April 2024
Run/walk/roll for ME and the Long Haul!
Join Team MassME at the McCourt Foundation's 2024 Boston Waterfront 5K on June 9
Run for ME! Run for the Long Haul! Help us to raise awareness of ME/CFS and Long COVID, and to fund MassME's ongoing information and support programs.
Register as a participant
We know that 5K is a marathon — or beyond — for many with ME or LC. Ask healthy friends or family members to run on your behalf with Team MassME using this link. The 5K course will be accessible to wheelchairs, including motorized devices, and anyone needing assistance to participate can be accompanied by up to two support members who do not need to register.
The registration process is simple. The fee to register is $40 (plus a $4 processing fee).* Each participant will have their own fundraising page associated with Team MassME.
Support our team
You can donate at our main team page, or choose one of our team members to support their efforts! All donations will help us continue to bring you information and support programs. Together, we are stronger!
If you have any questions, please contact Susan Buckley.
*If the fee is a financial hardship, please let us know..
You can support Team MassME by clicking here. No amount is too small!