2025-04 April Newsletter
- Details
- Last Updated: 09 April 2025 09 April 2025
In this month's newsletter:
- Events
- Gen Z/Millennial Groups
- Sunday Conversations
- Upcoming Event: The 2025 Boston Waterfront 5K
- Advocacy Corner
- MassME Health Survey #2
- Solve M.E. Annual Advocacy Week
- Newsworthy Events & Links
MassME’s Boston Waterfront 5K
- Details
- Last Updated: 07 April 2025 07 April 2025
MassME’s Boston Waterfront 5K is for everyone!
You can help raise awareness about ME and fund MassME’s vital programs.
Run, walk or roll on Team MassME!
OR
Cheerlead from home! Support our Team and ask others to be supporters.
Here’s how:
- Join the Team. Register as a participant. This inspiring June 15 event unfolds along scenic waterfront and ends with post-race festivities. The 5K course will be accessible to wheelchairs, including motorized devices. (If you need assistance, up to two support members can accompany you without registering.)
- You will have your own MassME fundraising page. Ask your network to support your participation. Registration is simple. (Let us know if the $40 fee is a hardship.)
- Ask friends, family members and colleagues to run, walk or roll on your behalf. Donations will go to your fundraising page.
- Recruit supporters. Supporters can donate to our main Team page or to any Team member. Imagine if every MassME member enlisted 5 supporters for our 5K! Donations—especially now—are critical for MassME to continue to bring you essential information and services.
- Be a supporter. Donate what you can at our main Team page, or choose a Team member to support. No amount is too small.
The 2025 Boston Waterfront 5K is hosted by the McCourt Foundation. Last year, MassME raised over $13,000, and was a top fundraising organization at this annual event. Let’s see if we can do even better!
Please share this opportunity with your network. Support Team MassME by clicking here!
Sunday Conversations - April 2025
- Details
- Last Updated: 29 April 2025 29 April 2025
"Twisted Connections: The Dynamic Relationship of ME/CFS and Hypermobile Ehlers-Danlos Syndrome"
Sunday, April 27, 2025, 4 p.m. Eastern Time
Sallie Rediske, MPT
In this edition of Sunday Conversations, the increasingly recognized "twisted connections" between ME/CFS and hypermobile Ehlers-Danlos will be discussed. Sallie Rediske, MPT (Master of Physical Therapy) will offer a casual yet informed understanding of the challenges of simultaneously living with and managing both conditions.
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Notice about names
The Massachusetts ME/CFS & FM Association would like to clarify the use of the various acronyms for Chronic Fatigue Syndrome (CFS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME) on this site. When we generate our own articles on the illness, we will refer to it as ME/CFS, the term now generally used in the United States. When we are reporting on someone else’s report, we will use the term they use. The National Institutes of Health (NIH) and other federal agencies, including the CDC, are currently using ME/CFS.
Massachusetts ME/CFS & FM Association changed its name in July, 2018, to reflect this consensus.