About Us

For four decades, the Massachusetts ME/CFS and FM Association has been a lifeline for people living with myalgic encephalomyelitis (ME/CFS), fibromyalgia, and other infection-associated chronic conditions and illnesses (IACCIs). We began as a network of support groups across Massachusetts in 1983, when ME/CFS was named Chronic Epstein Barr Virus Syndrome (CEBV). Word of our existence spread worldwide and, despite our focus on Massachusetts, we became a source of reliable information for individuals throughout the world. We’ve changed our name several times to keep up with changing medical naming conventions, but have never changed our core purpose: to be a welcoming, safe place for patients and families struggling with these illnesses.

Mission

The Association supports people living with ME/CFS and their families by connecting them to supportive resources and each other, and by educating and advocating to expand the ME/CFS healthcare and social service infrastructure in Massachusetts.

Mutual support

We are a ‘home base’ for people affected by ME/CFS, providing opportunities for members to support one another and share knowledge, advice, information, and hope.

Medical education

We raise awareness of ME/CFS among healthcare professionals with the goal of increasing the pool of knowledgeable providers available to diagnose and treat individuals in Massachusetts.

Service advocacy

We build relationships with support service agencies so that we can effectively advocate for the needs of our members and increase the service providers’ capacity, willingness, and effectiveness in working with ME/CFS patients.

Historical Archive

Learn more about the history of the Massachusetts ME/CFS & FM Association.
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Advice & Guidance

Helpful information from people who have been suffering from ME/CFS & FM for many years.
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About ME/CFS

Visiting for the first time? Here’s where you can find a wealth of information about ME/CFS.
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