Further Reading

Books about living with ME/CFS

• We Are Not Alone—Learning to Live with Chronic Illness by Sefra Kobrin Pitzele,  NY, Workman Publishing Co., 1st edition, 1986.
• The Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life by Patricia Fennell, NY, Albany Health Management Publishing, revised edition, 2011.
• Running on Empty (revised edition) by Dr. Katrina Berne, CA. Hunter House; 2nd Revised edition, 1995.
• From Fatigued to Fantastic!: A Proven Program to Regain Vibrant Health, Based on a New Scientific Study Showing Effective Treatment for Chronic Fatigue and Fibromyalgia, by Jacob Teitelbaum, 2001.

Patient voices

• The Invisible Kingdom: Reimagining Chronic Illness by Meghan O’Rourke, NY, Riverhead Books, 2022.
• The Lady’s Handbook for Her Mysterious Illness by Sarah Ramey, NY, Anchor, 2020.
• Through the Shadowlands: A Science Writer’s Odyssey into an Illness Science Doesn’t Understand by Julie Rehmeyer, NY, Rodale Books, 2017.
• American Breakdown: Our Ailing Nation, My Body’s Revolt, and the Nineteenth-Century Woman Who Brought Me Back to Life by Jennifer Lunden, NY, Harper Collins, 2025.
• The Long Haul: How Long COVID Survivors are Revolutionizing Health Care by Ryan Prior, Cambridge MA, The MIT Press, 2024.

The Massachusetts CFIDS/ME & FM Association does not assume any responsibility for the outcome of treatments or other self-care strategies described in any of the listed books, that might be undertaken by readers and we recommend individuals always consult with their healthcare providers before trying any new treatment, supplement, or healthcare product.