Planning Consultant Needed

The Massachusetts ME/CFS and FM Association (MassME) seeks a planning consultant. After more than 40 years of service we stand at a crossroads. The consultant will help us assess our path for evolution and sustainability. They will help us evaluate: 

  • The current service and education landscape for ME/CFS, Long COVID, and other Infection-Associated Chronic Conditions (IACCs) in Massachusetts and nationally
  • The most pressing needs of our ME/CFS and related communities 
  • Opportunities for partnerships and collaborations with aligned groups
  • MassME’s unique brand and value, and current and potential contributions 
  • Funding opportunities

The position is 100 hours over six months for a total of $10,000. The start date and schedule are flexible. Target completion is December 2026. 

Key responsibilities: Investigation and research, likely to include interviews and a survey; evaluation and planning sessions; findings analyzed and reported to the Board along with recommendations. Consultant will be guided and supported by MassME board and staff. 

Qualifications: Expertise in the patient advocacy nonprofit space; background/experience in a related health care field; experience with strategic analysis, organizational planning, and building collaborations; strong communication skills. Persons with lived experience or familiarity with ME/CFS, Long COVID, or other chronic illnesses preferred.  

MassME is a patient-led nonprofit organization that supports people living with ME/CFS and related conditions by connecting them and their families to supportive resources and each other, and by educating and advocating to improve and expand the ME/CFS healthcare and social service infrastructure in Massachusetts.

Please send your letter of interest and resume by May 31 to kathrynr@massmecfs.org. Questions via email are welcome.