Sunday Conversations – September 2026

“Insights and Inspiration from Support Group Leaders”

Sunday, September 20, 2026, 4:00pm Eastern Time

In this edition of Sunday Conversations, we’ll hear from several experienced support group leaders/facilitators about the experiences they have had in this role and why they are so enthusiastic about what they do. How can a support group help you and what can you expect if you join one?  Providing support to patients and caregivers is a key component of our mission; let’s learn more about it!

About the panel:

• Denise Lopez-Majano is a parent and caregiver for her two now adult sons who have had ME since they were nearly 12 and 15 years old. They got sick in 2005 and 2006. Denise has been involved in ME advocacy since 2007 as a way of channeling her frustration and anger about the “state of things ME” and because she wants to be part of helping make a difference in the lives of people with ME (and other IACCIs) and those who care about and care for them. One of Denise’s ongoing activities is facilitating a monthly support call for caregivers of people with ME and other IACCIs.
• Kerry Lang leads the Northeast Regional Meet-up group for patients for MassME. As a Licensed Mental Health Counselor, her work is focused on people with ME/CFS, Covid Long-Haulers, or Lyme Disease. Her goal is to support others with chronic illness through the healing power of creative expression.
• Kim Moy has been a caregiver for more than 20 years for her husband living with ME and has led the monthly partner caregiver support group for #MEAction since 2019. Through this journey, she discovered her calling as a caregiving coach and founded Caregiver Wisdom. As a board-certified health & wellness coach, she helps caregivers build resilience, live with ambiguous loss, and navigate change. Through her support group, group courses, weekly newsletter, and other offerings, she offers tools, coaching, and community. To learn more, visit CaregiverWisdom.net.
• Lisa Espiritu is a 35+ year ME survivor with extensive experience as both a chronic illness support group leader and a bereavement group facilitator. She has two adult sons and one granddaughter and lives in San Diego, California.

Resources and links

For patients:

• AMMES – Find a Support Group https://ammes.org/find-a-support-group/
• #MEAction – Find your group https://www.meaction.net/find-your-group
• SolveME keeps a list of support groups on their patient and caregiver resources page
• Bateman Horne resources, including a bi-monthly support group https://batemanhornecenter.org/outreach/support-connect/

For caregivers:

• My Perspective on the Making of a Support Group (MassMECFS)
• #MEAction – Offers two monthly caregiver support group meetings over Zoom. https://www.meaction.net/caregivers/
• Caregiver Wisdom – Offerings include a free monthly support group focused on caregiver wellbeing, which also serves as #MEAction’s partner caregiver support group (all caregivers are welcome), as well as a free weekly newsletter, educational blog posts, and other resources for caregivers of people living with ME/CFS, Long COVID, and other debilitating chronic illnesses. https://www.caregiverwisdom.net
• #MEAction’s Facebook Group for Caregivers https://www.facebook.com/groups/meactioncaregivers
• Parents of Adult Children with ME Facebook Group https://www.facebook.com/groups/250103603762745
• Parents of Kids & Teens with ME and Related Illnesses Facebook Group https://www.facebook.com/groups/164665786958252

This program is free and will be recorded for later viewing.